This photo represents what Joost’s main activity will be in the coming weeks.  Therefore Joost won’t be writing in this blog for a time.  “Why?” you ask.  In a nutshell, his white blood count is too low so he is on a low dose of the Sutent.  What this means so far is that he is quite tired and has extreme muscle pain again only this time in his shoulders.  Pain management is in effect and the painkillers are making him extra tired.  He needs to be careful with energy distribution so he’ll keep calls and visits to a minimum also. 

I’ll get on the ball again and try to write some myself in the meantime.  The only time I have usually is in the late evening when I am winding down.  This could make for either some really interesting reading or really boring depending on your perspective ha ha ha. 

Thanks to everyone and I mean everyone who gives us even a millisecond of a positive thought.  And of course, thanks for your understanding.

Jenn

You can follow any responses to this entry through the RSS 2.0 feed. You can leave a response, or trackback from your own site.